Rumeysa Gelgi Guinness World Records Holder At just two weeks old Rumeysa Gelgi was diagnosed with congenital scoliosis. It was caused by Weaver Syndrome, a genetic disorder she was born with For many years she didn’t realize she had scoliosis as it formed part of her life as far back as she can remember, …
2018 Stories
Widalys Paredes 9th Grade Student Widalys Paredes was diagnosed with Scoliosis at age 12. Her first thought was a fearful one, not knowing the severity of Scoliosis, and hoping that she would not have to undergo surgery on her spine, as she knew that the recovery process was not easy. “Someone as young as …
Catherine Ross Medical Device Engineer Manager Catherine’s dream was to enter the world of professional dance. Early in her life she was diagnosed with scoliosis and for years hung from a pull-up bar in hopes that this would correct the curvature of her spine. This did not work, when she was in her very …
Joe O’brien Business Leader Healthcare Educator Patient Advocate Researcher Co-founder Of Sosort Founder Of Smartt Institute President And Ceo Of National Scoliosis Foundation Joe O’Brien was a junior in high school when he was diagnosed with scoliosis; at the time he was 15 years old. Initially, he felt alone, afraid, and as a fraction …
Karmay Ngai Model | Environmentalist Founder Of Patch Love Universe And Project Gone For Good Karmay was diagnosed with Scoliosis at age 28. She felt discouraged that her condition had been unknown for too long. Faced with the fact that she would have to live with this condition for the rest of her life, …
Buki Elegbede Tv Host | Journalist Founder Of Once Upon A Dream Productions Buki Elegbede was diagnosed with scoliosis at the age of 15. Confused as to what was happening to his body, it would take Buki a few years before truly understanding why his physique was rapidly changing the way it did. After …
Taryn Kaschock Russell Artist Educator Scoliosis Advocate | Director Of The Harkness Dance Center At 92y At age 11 Taryn Kaschock Russell first heard the term “Adolescent Idiopathic Scoliosis” in reference to her spine. A physical education teacher sent her home with a note asking her parents to take her to her pediatrician after …
